Living with PBC, Primary Biliary Cirrhosis !

Disclosure: “Today’s post is a part of the Insider’s Program on Bloggy Moms. All opinions are my own.”

Today I want to talk to you about primary biliary cholangitis, formerly known as primary biliary cirrhosis (PBC). I’m sure many people may have never heard of this disease before let alone as to what causes it. PBC is a chronic, or long lasting, disease that causes the small bile ducts in the liver to become inflamed and damaged and ultimately disappear.

 

You see the bile ducts carry a fluid called bile from the liver to the gallbladder, where it is stored. When food enters the stomach after a meal, the gallbladder contracts, and the bile ducts carry bile to the duodenum, the first part of the small intestine, for use in digestion. The liver makes bile, which is made up of bile acids, cholesterol, fats, and fluids. Bile helps the body absorb fats, cholesterol, and fat-soluble vitamins. Bile also carries cholesterol, toxins, and waste products to the intestines, where the body removes them. When chronic inflammation, or swelling, damages the bile ducts, bile and toxic wastes build up in the liver which damage liver tissue.

 

But what most people if not all are not aware of is this disease is more commonly a disease of women, afflicting approximately 1 in 1,000 women over the age of 40. It has actually been the second-leading overall cause of liver transplant in women in the U.S. since 1988, and nearly 90% of people with PBC are women, that’s a lot of women!

 

PBC can appear in people younger than 25 years of age, but most people are diagnosed between 35 and 60 years of age. So as a woman, I want to make sure I’m knowledgeable about this disease not only for myself but for my older girls as well as all my girls’ friends.

 

That’s why it is so important to be aware of PBC and the severity of it! You must also be aware of the symptoms so you can speak with your physician. It is important to manage the disease and symptoms in order to prevent serious health issues and the possible need for liver transplant.

What are the symptoms of primary biliary cholangitis?

 

The first and most common symptoms of PBC are

  • fatigue, or feeling tired
  • itching skin, and darkened skin in itching areas due to scratching
  • dry eyes and mouth

 

Some people may have jaundice, a condition that causes the skin and whites of the eyes to turn yellow. It is important to be on a healthy diet in all stages of cirrhosis because malnutrition is common in people with this disease.

 

I want every women to beware and to bring awareness to other women, daughters, mothers, aunts and friends about PBC. I don’t want that 90% number to rise. With awareness we all can live a long healthy life. You can learn more about PBC and hear from those living with the condition at LivingwithPBC.com.

 

LivingwithPBC.com has a few interesting stories from women who are currently living with this disease. Take a moment to visit the site so you can learn more and remember …”You’re Not Alone”!



 

 

 

 

 

 

 

Disclosure: “Today’s post is a part of the Insider’s Program on Bloggy Moms. All opinions are my own.”

LisaLisa

My name is Lisa and my husband Carl, and I are the owners of the Night Helper Blog. We have been married for over 30 years and we have three awesome children, plus four adorable very active grandkids. From time to time they too are contributors to the Night Helper Blog. We enjoy reading, listening to music, entertaining, travel, movies and of course blogging. The Night Helper blog was created in 2008. Since then we have been blessed to partner with many well-known Brands like Best Buy, Fisher Price, Toys "R" US., Hasbro, Disney, Teleflora, ClearCorrect, Radio Shack, VTech, KIA Motor, MAZDA and many other great brands.

128 thoughts on “Living with PBC, Primary Biliary Cirrhosis !

  • April 12, 2016 at 11:54 pm
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    Thank you for the information on this. This is something I didn’t know much about.

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  • April 12, 2016 at 10:24 pm
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    I really did not realize that someone so young could have any kind of cirrhosis. It’s nice that you’re sharing information, I’m sure this is going to end up being very helpful to someone (a lot of someones) if it hasn’t already.

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  • April 12, 2016 at 9:57 pm
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    This is very interesting. I was not aware of it before.

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  • April 12, 2016 at 7:59 pm
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    Thanks for publicizing this serious illness.

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  • April 12, 2016 at 7:24 pm
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    thanks for sharing your story. my little sister now 53. has suffered with chrones since 1989. and has had 3 heart attacks. i have seen here on her good days,bad. good luck.

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  • April 12, 2016 at 6:36 pm
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    Very good info to know. Thank you so much.

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  • April 12, 2016 at 5:59 pm
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    something to keep my eyes open for great article of something i would not have ever thought of

    Reply
  • April 12, 2016 at 3:58 pm
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    Thank you for sharing this information!

    Reply
  • April 12, 2016 at 2:29 pm
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    So many diseases and so few cures!

    Reply
  • April 12, 2016 at 2:18 pm
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    This was very informative. This is one illness that I had never heard anything about.
    I’m glad now that I’m informed about it.

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  • April 12, 2016 at 2:17 pm
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    Thank you for the information you shared about PBC. I learned something new.

    Reply
  • April 12, 2016 at 9:25 am
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    I have never heard of this disease before..Thank you for posting it helps to be aware.

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  • April 11, 2016 at 10:01 pm
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    thanks for the information, I have never heard of this before but I will be more informed on this disease.

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  • April 11, 2016 at 4:05 pm
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    I had never been aware of this

    Reply
  • April 11, 2016 at 3:25 pm
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    I hadn’t heard of this before but it’s definitely something to be aware of. I actually have a few of these symptoms. Thanks for bringing awareness.

    Reply
  • April 11, 2016 at 2:43 pm
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    I have never heard of this. Thanks for making me aware!

    Reply
  • April 11, 2016 at 2:11 pm
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    Wow! Have never heard of this. Glad there are medications to atleast help. Some things you read about and you feel very fortunate afterwards!

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  • April 11, 2016 at 1:43 am
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    So glad this is being brought to light. Thanks for the information.

    Reply
  • April 11, 2016 at 12:00 am
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    This is the first I have heard of this. Very informative site!

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  • April 10, 2016 at 9:43 pm
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    I’ve never heard of this either. I’m glad someone is bringing awareness!

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  • April 10, 2016 at 7:39 pm
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    I have also never heard of this before but thank you for making me aware.

    Reply
  • April 10, 2016 at 4:49 pm
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    I have never heard of PBC. Thanks for the informative post.

    Reply
  • April 10, 2016 at 2:32 pm
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    Thank you for letting us know about this. Thank you for sharing.

    Reply
  • April 10, 2016 at 11:15 am
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    The information you shared on Primary Biliary Cholangitis is good to know. Thank you for sharing with us.

    Reply
  • April 10, 2016 at 8:02 am
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    I had never heard of this disease before. Thanks for the great information!

    Reply
  • April 10, 2016 at 2:17 am
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    Thank you for your excellent and knowledgeable piece on Primary Biliary Cholangitis. Generating awareness of these illnesses/diseases is so important.

    Reply
  • April 10, 2016 at 2:12 am
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    Thank you for you excellent and knowledgeable piece on Primary Biliary Cholangitis. Generating awareness of illnesses/diseases such as this one is so very important.

    Reply
  • April 10, 2016 at 12:28 am
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    I’ve actually never heard of this before. Thank you for sharing! It’s good to be informed!

    Reply
  • April 9, 2016 at 4:20 pm
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    This was scary to read. Some of the conditions sounds like me! Thanks for the information.

    Reply
  • April 9, 2016 at 7:26 am
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    What scary sounding condition. Thanks for bringing this to my attention!

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  • April 8, 2016 at 8:04 pm
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    Thank you for alerting me to this condition.

    Reply
  • April 8, 2016 at 12:19 pm
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    I had never heard of this condition before. Thanks for the informative post!

    Reply
  • April 8, 2016 at 11:17 am
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    I had never heard of this disease before. Thanks for the great information!

    Reply
  • April 7, 2016 at 10:11 pm
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    I hadn’t heard of this before. Interesting to find out something new & important!

    Reply
  • April 7, 2016 at 10:21 am
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    I always like learning something new, and I just did. When I was pregnant, over 30 years ago, I had too much bile in my system. This caused fatigue and itching.

    Reply
  • April 7, 2016 at 9:50 am
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    I had never heard of this before! Thanks for the information.

    Reply
  • April 7, 2016 at 8:27 am
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    I have never heard of this disease before, thank you for the information!

    Reply
  • April 7, 2016 at 12:10 am
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    I’m wondering if this is quite rare, since it seems that most people (including me) have never heard of it, or if it’s one of those under-diagnosed illnesses.

    Reply
  • April 6, 2016 at 6:39 pm
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    I am shocked by this. The symptoms are awful. Hope a cure for all this and more is found quickly.

    Reply
  • April 6, 2016 at 4:48 pm
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    I have never heard of this before. Thank you for sharing the information!!

    Reply
  • April 6, 2016 at 4:04 am
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    Thanks for the information on this disease and a description of the symptoms.

    Reply
  • April 5, 2016 at 1:05 pm
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    Wow, I had never heard of this before. Thank you for taking time to spread awareness

    Reply
  • April 5, 2016 at 2:44 am
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    Thank you for the information! I am a big believer in being informed!

    Reply
  • April 4, 2016 at 11:31 pm
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    Intersting. Never heard of this before

    Reply
  • April 4, 2016 at 3:17 pm
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    I hadn’t heard of this disease. It sounds perfectly awful.

    Reply
  • April 4, 2016 at 1:04 pm
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    I never heard of this before. Thank you for sharing.

    Reply
  • April 3, 2016 at 10:00 pm
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    I have never heard of this disease before! Thanks for the information!

    Reply
  • April 3, 2016 at 9:19 pm
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    Thank you for the information.

    Reply
  • April 3, 2016 at 7:55 pm
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    Great information! Thanks.

    Reply
  • April 3, 2016 at 6:41 pm
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    All new imformation for me. It is nice to know what to look out for.

    Reply
  • April 3, 2016 at 4:12 pm
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    First time on this site and it will not be my last

    Reply
  • April 3, 2016 at 1:40 pm
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    Thanks for bringing this to everyone’s attention.! I’d never heard of this condition.

    Reply
  • April 3, 2016 at 10:31 am
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    not many symptoms for as serious as it can be. thanks for the great information!

    Reply
  • April 3, 2016 at 9:07 am
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    Thanks for the information. I like the others have never heard of this so it was very informative. Thank you!

    Reply
  • April 3, 2016 at 7:57 am
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    Thank you for the good information. I didn’t know about this.

    Reply
  • April 3, 2016 at 6:08 am
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    Thank you for the information, I had never heard of PBC before.

    Reply
  • April 3, 2016 at 3:19 am
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    Thanks for sharing this important information on PBC.

    Reply
  • April 3, 2016 at 1:44 am
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    Was not aware of this disease, good to know. Thank you for this info!

    Reply
  • April 3, 2016 at 12:06 am
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    Wow, this sounds very serious. I have never heard of it before. Good job for raising awareness.

    Reply
  • April 2, 2016 at 11:56 pm
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    Thanks for sharing this info. I have not heard of this until now, and I like to learn more about illnesses so that I can better empathize with people.

    Reply
  • April 2, 2016 at 8:56 pm
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    Wow, this is the first that I have heard of PBC. Glad I took the time to read. I found it very interesting.

    Reply
  • April 2, 2016 at 7:45 pm
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    love the information. it was very helpful

    Reply
  • April 2, 2016 at 7:37 pm
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    Thank you so much for the information!

    Reply
  • April 2, 2016 at 5:57 pm
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    Having never heard of this, I am amazed to discover so much info.
    Thank you.

    Reply
  • April 2, 2016 at 5:50 pm
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    I never heard of PBC before. Sounds frightening.

    Reply
  • April 2, 2016 at 3:00 pm
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    Knowledge is power. Thanks for sharing!

    Reply
  • April 2, 2016 at 11:56 am
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    Thanks for all the info.

    Reply
  • April 2, 2016 at 10:43 am
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    I am so glad I read this post. I had not heard of PBC and never even thought about it. Thank you!

    Reply
  • April 2, 2016 at 10:25 am
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    Very informative post, Thank you!

    Reply
  • April 2, 2016 at 1:59 am
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    Indeed I have never heard of this disease. Thank you for the info.

    Reply
  • April 1, 2016 at 10:39 pm
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    Thanks for the information.

    Reply
  • April 1, 2016 at 5:19 pm
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    I have never heard of this disease prior to this post. I will be sure to share to my friends and family

    Reply
  • April 1, 2016 at 1:24 pm
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    I did not know about this. Thanks for sharing the information.

    Reply
  • April 1, 2016 at 11:58 am
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    I did not know anything about this until you shared your article. I learned alot from you. I hope they find a cure soon. Thank you for sharing

    Reply
  • April 1, 2016 at 5:34 am
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    I have never heard of PBC before. Thank you for the information, many of the women in my life are over 40 and I would bet they are unaware also.

    Reply
  • March 31, 2016 at 11:34 pm
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    I have never heard of PBC before. Thank you for bring in “out” so to speak! Now I know what to watch out for!

    Reply
  • March 31, 2016 at 6:59 pm
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    A very informative article!

    Reply
  • March 31, 2016 at 5:06 pm
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    I’ve never heard of this disease, I’m glad you are informing women about it.

    Reply
  • March 31, 2016 at 12:28 pm
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    I had not heard of this before your post. Since women are mostly affected by this, I appreciate the knowledge you shared. Awareness is important!

    Reply
  • March 31, 2016 at 11:56 am
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    I had not heard of PBC before now. Thank you for sharing this vital information on this disease, as well as what symptoms to look for to share with your doctor.

    Reply
  • March 31, 2016 at 11:25 am
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    I have never heard of PBC,I’m grateful for the information,this condition sounds so painful,I will certainly pay attention to the health concerns for all the women I know.

    Reply
  • March 31, 2016 at 10:58 am
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    This is all new to me. It is good to be informed about things like this if you have unexplained symptoms. Thanks for a great article.

    Reply
  • March 31, 2016 at 10:07 am
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    I had never heard of this disease before I read this post thank you for informing people especially woman.

    Reply
  • March 31, 2016 at 10:00 am
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    thanks for this information. I’ve never even heard of it!

    Reply
  • March 31, 2016 at 9:26 am
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    Good to know. Thanks for sharing this article.

    Reply
  • March 31, 2016 at 9:04 am
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    I was never aware of any of this. Thank you for bringing it to my attention!

    Reply
  • March 31, 2016 at 5:40 am
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    I have never heard of this..Thanks for such great information.

    Reply
  • March 31, 2016 at 4:38 am
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    I’ve never heard of PBC before reading this always good to know the symptoms of illness Dr sometimes miss them.

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  • March 31, 2016 at 3:57 am
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    This is something I never heard about before. This post is very educational.

    Reply
  • March 31, 2016 at 1:42 am
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    Very good read. Thank you for the info. I need to help make others aware of this also. I am a wait til it’s to late kinda person in reference to my own health. Thinking I need to change that at 52

    Reply
  • March 30, 2016 at 10:44 pm
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    Thanks for the info on this. Hopefully, I’ll never have to use it, but being informed and proactive about our health is essential. It’s scary to think that this might require a liver transplant! And I’ve probab;y never heard of this because it affects mostly women. Ever notice how doctors never take us seriously? Thanks for the article, my eyes have been opened!

    Reply
  • March 30, 2016 at 10:35 pm
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    I have a co-worker with a lot of these same symptoms and has no idea why. Will have him take this to his doctor.

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  • March 30, 2016 at 10:18 pm
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    You’re right, I’ve never heard of this before. It doesn’t sound very pleasant either.

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  • March 30, 2016 at 10:07 pm
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    I have never heard of the disease before, thanks for shedding light on it and bring it to my attention.

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  • March 30, 2016 at 10:01 pm
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    I have never heard of this but will research it now. I have some of the symptoms. My brother died of end stage liver disease 4 years ago.

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  • March 30, 2016 at 9:52 pm
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    I have never heard of this before.

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  • March 30, 2016 at 9:48 pm
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    I have never heard of this disease, now I will be much more aware of it, thank you.

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  • March 30, 2016 at 9:20 pm
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    i have never heard of this

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  • March 30, 2016 at 9:14 pm
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    I couldn’t read it all, my stomach is sensitive . But thanks for sharing the info out to people who need it.

    Reply
  • March 30, 2016 at 9:04 pm
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    I have never heard of this but I will remember this one and the symptoms.

    Reply
  • March 30, 2016 at 8:12 pm
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    I have never heard of PBC before. Thank you for sharing this and letting us know about it.

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  • March 30, 2016 at 8:11 pm
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    I’ve never heard of this before! Thanks for informing me.

    Reply
  • March 30, 2016 at 7:01 pm
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    Didn’t know about this. I have RA and my liver functions are checked every 12 weeks.

    Reply
  • March 30, 2016 at 7:01 pm
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    I never heard of this before

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  • March 30, 2016 at 6:51 pm
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    I have never honestly heard of this disease & good to know i’m not the only one. I really appreciate the information on it & intent on passing it along

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  • March 30, 2016 at 5:50 pm
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    This sounds awful, but how common is it/ I have never even heard of it.

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    • March 30, 2016 at 5:51 pm
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      Also, they should know that the links from the ‘symptoms’ graphics lead nowhere.

      Reply
  • March 30, 2016 at 5:17 pm
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    I had never heard of this condition. Thank you for your post,

    Reply
  • March 30, 2016 at 5:09 pm
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    I had never heard of PBC before reading your post. Thank you for this information. I’m glad that there is medication to help those who are suffering with this.

    Reply
  • March 30, 2016 at 4:34 pm
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    Your article about PBC has really opened my eyes! I had never heard of this particular condition before! Thanks for this very important post!!

    Reply
  • March 30, 2016 at 4:03 pm
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    I’ve never heard of PBC. I shared on my Pinterest board. I think it is important to let others know the symptoms, and that their are medications to help.

    Reply
  • March 30, 2016 at 2:42 pm
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    Something to learn about

    Reply
  • March 30, 2016 at 2:02 pm
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    I have never heard of this condition before, it sounds awful. Thank you for posting to inform more women about this disease!

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  • March 30, 2016 at 12:50 pm
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    I have never heard of this disease either.Thanks for sharing.

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  • March 30, 2016 at 12:18 pm
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    Ive never heard of this disease, good information ,I will have to read up on it.

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  • March 30, 2016 at 10:21 am
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    I have a very weak stomach. Now I probably won’t be able to eat all day. I can’t read about things like this.

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  • March 30, 2016 at 8:54 am
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    I too, had never heard of this either!

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  • March 30, 2016 at 8:42 am
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    I have never heard of this. I do know most things with the intestines are hard to correctly diagnose.

    Reply
  • March 30, 2016 at 7:03 am
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    I have never heard of this and I have studied medicine. I’m going to get my medical encyclopedia out and look deeper into this disease. Thank you for bringing it women’s attention.

    Reply
  • March 30, 2016 at 12:33 am
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    wow never heard of this thanks for the information great too know about this for sure

    Reply
  • March 30, 2016 at 12:10 am
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    Thank you for bringing this to our attention. I hadn’t heard of it, but health isn’t something to mess with. You know your body. Trust yourself and know you aren’t alone.

    Reply
  • March 29, 2016 at 11:23 pm
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    I’ve never heard of this disease and it certainly doesn’t sound pleasant either. However, I do have to say that the symptoms are super vague and could be symptoms for any number of diseases and illnesses.

    Reply
  • March 29, 2016 at 9:40 pm
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    I had never heard of this before.

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  • March 29, 2016 at 9:11 pm
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    I have never heard of this disease and good to know that there are medicines that can slow the progression of it. So very important for women especially to be aware of and know the symptoms.

    Reply

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